Patient Support Group

Support Groups & Mentorships

If you're struggling through a transplant or through a donation in the family, just remember that you are not alone. There are many people who are going through the organ donation and transplantation process, and for whom support may help go a long way. It isn’t easy to simplify the range of challenges people face while going through a transplant or an organ donation.

We can help you through Support Groups or Finding a Mentor to guide you through your transplant whether you are a patient or a caregiver. If you have been through the transplant process and would like to become a Mentor, do get in touch with us. You can click on the necessary tabs and send in your forms.

We have a network of people from Donor Families, Transplant Recipients, Doctors, Transplant Coordinators, who will be able to get you through the process of organ donation and transplantation by sharing their own experiences, advice, suggestions and most of all – Support.

Here are some considerations when reaching out for support.

  • If you have an immediate emergency in which you or someone you know is a living donor, deceased donor or a recipient, you should immediately call our Helpline at 011-41838382, 9650952810 or the NOTTO Helpline at 1800-11-4770.
  • We can help you make an appointment with your Doctor, specialist, or NGO in your area.
  • Seeking out Support Groups in your community and educating yourself about organ donation and transplantation is the best way to get through the process. Social support and knowledge can be valuable tools for coping with donations and transplantation.
  • Seeking a Mentor will be a good way to cope with the entire process. They can help guide at an individual level you through your specific challenges.

How a Transplant Support Group Can Help

Our program provides free, monthly support groups for organ transplant patients and their families. The groups are designed to provide the latest medical information regarding treatment and support in coping with the stresses involved in the transplant process.

However keep in mind that there are also some good reasons to attend transplant support group meetings. A group can be your lifeline in trying times. You will be able to meet others with similar thoughts and concerns, and realize you are not alone. In this respect, support groups can help reduce anxiety and depression.

Patients often learn from each other and exchange important information. Other patients and their relatives can help you become familiar with members of the transplant teams. Knowledgeable staff members, who can help provide support and education, facilitate the groups.

If you would like to join our Support Group please fill up the form below and send it to our email organindiaring@gmail.com

The support group meetings will begin in March. For more information you can call 9650952810, 9818303303, 011-42838382

It is normal to feel apprehensive about attending a transplant support group. Many people feel reluctant about talking in a group setting. Others feel that they don’t want to listen to others’ problems. For those we have a mentor programme where you can talk directly and be advised by mentor a. For that please go to Find A Mentor and fill out the form.

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Find A Mentor

This is a valuable and program is designed to provide information, guidance and emotional support to those involved in the transplant process through a mentor who has already been through the same process. It is for patients as well as caregivers who sometimes face a lot of anxiety on what to do and how to deal with the prognosis. The programme can also eventually tie into the Support Group programme later if the person wishes.

An initial diagnosis of a transplant can make someone feel completely alone. Doubts arise on whether they are on the right path clinically, and that family and friends around may not understand firsthand what patients are going through. This is why having a mentor is so important. We will put people in touch with people who have been through this experience either themselves or with their relatives so that you can receive the support they need. When a patient requests a mentor, the program staff facilitates a match with respect to diagnosis, gender, age and area.

This is what our Mentor Programme will do for you:

Providing peer support. Mentors provide patients with support through telephone calls, visits, mail or E-mail. You can ask your Mentor all the questions you are uncertain about. They are empathetic individuals and have firsthand answers to all the hard-to-ask questions.

Providing helpful transplant information. Mentors offer valuable perspectives, helpful and positive strategies learned from his or her own experience. This one-on-one communication with another transplant patient offers both an individualized and highly personal account of the transplant process.

Helping patients work with the transplant team. The importance of working well with the transplant team cannot be over emphasized. Mentors, because of their personal experience, can assist the patient in learning to interact in a productive way with the team.

Providing support and encouragement to comply with prescribed medications and exercise, and instructions given by the Doctors. This should lead to a positive outcome for transplantation. Mentors offer support and encouragement in this process.

If you would like a Mentor please fill out the form below and submit it to organindiaring@gmail.com with the Subject Line – Find A Mentor.

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Mentoring

The Transplant Mentor Program at ORGAN India has arisen because of our own personal experience of needing a mentor for the Chief Trustee of the Parashar Foundation, Mrs. Kirti Parashar, who received a heart transplant over 4 years ago. It is based on the concept of providing help to others through your own experiences, something that Mrs. Parashar did not have the benefit of.

The mentors of the program are mostly but not exclusively patients who have already successfully gone through transplants. Knowing that others have survived the experience, and are available to discuss it, can be helpful and reassuring to transplant patients.

This is a valuable and unique program designed to provide information, guidance and emotional support to those involved in the transplant process. The idea is that mentors should strive to instill confidence and provide encouragement as patients move forward through the process. They help overcome the patient’s sense of being alone, and to encourage them to stay active and positive before and after transplant.

Mentors are expected to maintain confidentiality of patient information.

Becoming a Mentor

If you feel you have the qualities to become a mentor to a patient then please fill up the following form and mail it to organindiaring@gmail.com with the Subject Line: Becoming A Mentor. Or call us at 9650952810, 9818303303, 011-42838382

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